In February 2017, our nephew was diagnosed with Kleine-Levin Syndrome.
We had never heard of this disorder. Why would we have heard of it? It is so rare, extremely rare, beyond rare. The rarity is both a blessing and an extreme difficulty. The blessing–we are thankful that other families and individuals most likely will never be directly affected by this disorder. The extreme difficulty–because it is so rare, there is currently less than a handful of active studies on the disorder and little funding for research. Kleine-Levin Syndrome has come into our family’s life. Now that it is here, we are dedicated to helping our nephew and all people with KLS and their families.
How can we make a difference? How can we help? What can we do? We can work together to raise funds to support the medical researchers working to find a cure.
Together, over the past three years with your support of our Yoga in the Park with The YOGA Exchange fundraising event, we have raised over $77,000 for KLS research. Thank you to everyone. Your kindness and generosity mean the world to us, to our mom and dad and to our sister and her family and all families living KLS. Let’s keep working together to fund medical research.
We hope that you will join us–either in person or on a “virtual mat”–for the 4th annual Yoga in The Park with The YOGA Exchange of Holliston in September 2020. 100% of all donations received for Yoga in the Park with The YOGA Exchange go directly and immediately to fund Kleine-Levin Syndrome research.
In the meantime, you can continue to help fund Kleine-Levin Syndrome research and help those living with KLS by donating and making an impact! Donations of any amount are greatly appreciated. Please give what you can. Thank you for your generosity.
To donate online or for information about how to donate by check, please click here: https://klsfoundation.org/donations/
Practice yoga. Practice compassion. Together we can make a difference.
Thank you for your time, your kindness and your contributions! We are so grateful for your continued support!
Andrea & Daniela (aka Aunt A & Aunt D)