Our nephew was recently diagnosed with Kleine-Levin Syndrome.
We had never heard of this disorder. Why would we have heard of it? It is so rare, extremely rare, beyond rare. The rarity is both a blessing and an extreme difficulty. The blessing–we are thankful that other families and individuals most likely will never be directly affected by this disorder. The extreme difficulty–because it is so rare, there is currently less than a handful of active studies on the disorder and little funding for research. Kleine-Levin Syndrome has come into our family’s life. Now that it is here, we are dedicated to helping our nephew and all people with KLS and their families.
How can we make a difference? How can we help? What can we do? We can work together to raise funds for the Kleine-Levin Syndrome Foundation, a 501(c)(3) non-profit organization that in addition to providing information and support to those diagnosed with KLS and their families also awards grants to medical researchers to help find effective treatments and ultimately find a cure for Kleine-Levin Syndrome.
We hope that you will join us–either in person or on a “virtual mat”–in September 2018 for the 2nd annual Yoga in The Park with The YOGA Exchange of Holliston. 100% of the proceeds of this fundraising event goes to support the Kleine-Levin Syndrome Foundation’s research fund.
Practice yoga. Practice compassion. Together we can make a difference.
Thank you for your time, your kindness and your contributions!
Andrea & Daniela (aka Aunt A & Aunt D)